Empowering Patients & Consumers

Below are a few examples from a range of projects and reports on Patient & Consumer Engagement that SWL has developed, either directly or in collaboration with patient advocacy organizations. For more information or to explore working with SWL on your upcoming project, contact Diane Stollenwerk at diane@stollenwerks.com

A Systematic Approach to Understanding and Implementing Patient-Centered Care. Special article published in the Annals of Family Medicine regarding the challenge of improving delivery of patient-centered care and promoting patient engagement. The paper addresses lessons learned by Family Medicine for America’s Health, a collaboration of eight physician associations focused on promoting patient-centered primary care.   https://journals.stfm.org/familymedicine/2019/february/stollenwerk-2018-0284/  (published 2019)

Public and Consumer Perspectives to Promote and Expand Family Medicine. Represented consumers’ viewpoints on the national board of Family Medicine for America’s Health, a collaboration of the eight leading physician organizations in the United States committed to improving the U.S. health care system and demonstrating the value of primary care.  https://fmahealth.org/ (2017-2019)

Adolescent Behavioral Health Initiative: Learning from Families’ Stories About Getting Teens Access to Needed Care. Project conducted in collaboration with the Patients’ View Institute, for the Jewish Healthcare Foundation (2016-2017)

Developing Principles for Patient Centered Measurement. Project conducted in collaboration with the Patients’ View Institute, for the American Institutes for Research (2016-2017)

Listening and Learning from the Stories Told by Patients’ and Consumers: Lessons from Turning Qualitative Information into Quantitative Data. Project developed in collaboration with the Patients’ View Institute, for the American Institutes for Research (2016)

Guide to Helpful Resources in Maryland: Using the Patients’ View Principles to Anticipate Consumer Needs and Questions about Health Care. Project developed in collaboration with the Patients’ View Institute, for the Maryland Faith Health Network (2016)

Choosing Quality Care: Information that Parents of Special Need Children Say they Want and Need from the Health Care System. Research and report conducted in collaboration with Children’s National Medical Center, Washington DC (2013-2016)

Public Reporting of Provider Performance to Consumers:  A Decision Guide for Multi-stakeholder Collaboratives. Contributing author to a report developed by the Agency for Healthcare Research and Quality (2011)

Communication Toolkit to Promote Online Health Care Reports to the Public. Author of this report and related practical templates, developed for use and dissemination by the Agency for Healthcare Research and Quality (2010)

For more information or to explore working with SWL on your upcoming project, contact Diane Stollenwerk at diane@stollenwerks.com